Toddler with rare disease receives life-saving liver transplant in Miami

It s the story of a sick newborn brought to a neonatal intensive care unit. Courtney Allen shares his story and his mother s mission to let other parents know about a rare and life-threatening hereditary condition. Henry Dotson has a way of lighting up a room. He s the center of mom Amanda and dad Ryan Dotson s universe. But this happy, adorable 1-year-old has been through more in his short life than most people can imagine. Amanda: There were days that I thought that we were never gonna get past it. Within hours of being born, Henry got fussy and refused to eat. That s when a nurse took his temperature and made a startling discovery. Amanda: He was cold. He was hypothermic. Henry was rushed to the Neonatal ICU, where doctors determined Henry had a rare and dangerous condition called Ornithine Transcarbamoylase (OTC) deficiency. Amanda: It affects the way his body processes protein, so it turns into toxic ammonia. People with OTC deficiency lack a liver en